Proceedings of the 31st International Academic Conference, London

ALBINISM IN THE BLACK POPULATION OF SOUTH AFRICA: UNCOVERING THE HEALTH CHALLENGES FROM A LEGAL PERSPECTIVE

MPHOENG MAUREEN MSWELA

Abstract:

The Cancer Association of South Africa (CANSA) has acknowledged that persons with albinism face the highest risk of developing skin cancer. While information concerning their susceptibility to cancer is very important, CANSA observed that such information is communicated to persons with albinism at a very late stage, especially those living in rural areas of South Africa. As well, interviews with and campaigns led by the Chairperson of the Albinism Society of South Africa have revealed that the national health system has failed to adequately consider and take into account the health care needs of persons living with albinism. Very few persons with albinism have access to sunglasses with a high UV protection screen to relieve light sensitivity, or to preventative services such as dermatological skin checks, eye checks and eye corrections. This paper argues that the recognition of the right of access to health care in the South African Constitution affords persons living with albinism the right to challenge the government’s failure to provide them with such essential health care needs. This paper also discusses the pertinent clinical aspects of albinism, with the aim of contextualising the legal discussion in the rest of the paper.

Keywords: Albinism, genetics, skin cancer, Oculocutaneous albinism, X-linked ocular albinism, the right to health care,

DOI: 10.20472/IAC.2017.031.033

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